Rett UK - Family Support Helpline
Victory House, Chobham Street
Luton
Bedfordshire
LU1 3BS
Public phone: 01582 798911 / 01582 798910
Email: support@rettuk.org
Website URL: http://www.rettuk.org
Service offered: We provide support to families, carers and professionals involved with people with Rett syndrome. The support team provides a valuable life-line for families across the UK from pre-diagnosis through to end of life support. Offer practical help, information and a listening ear to enable families to cope. If the team is unable to deal with a particular question then Rett UK has a network of professionals who will be able to help, ranging from paediatricians, geneticists, epileptologists, dieticians and physiotherapists. Provide a number of specialist Rett Clinics in partnership with the NHS. Website has free information leaflets and papers to download
Target group: Families, carers and professionals involved with people with Rett syndrome.
Area served: UK
How to contact: Phone (01582 798911), Email, Facebook and Website. Open Monday to Friday 9am-4.30pm
Monday: 9am - 4.30pm
Tuesday: 9am - 4.30pm
Wednesday: 9am - 4.30pm
Thursday: 9am - 4.30pm
Friday: 9am - 4.30pm
Weekends: Closed ( in case of an emergency please follow instructions on answerphone )
Office Hours:
Wheelchair access: Yes - full
Accessible toilets: Yes
Access notes: No on site parking, large car-park nearby, charges apply. Large disabled toilet, no Changing Places facilities
Languages other than English:
Charity number: 1137820
Year established: 34
Staffing: 8
Public transport:
Record last checked: 19 August 2020