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Rett UK - Family Support Helpline

Contact details

Rett UK - Family Support Helpline
Victory House, Chobham Street

Public phone: 01582 798911 / 01582 798910


Website URL:

General information

Service offered: We provide support to families, carers and professionals involved with people with Rett syndrome. The support team provides a valuable life-line for families across the UK from pre-diagnosis through to end of life support. Offer practical help, information and a listening ear to enable families to cope. If the team is unable to deal with a particular question then Rett UK has a network of professionals who will be able to help, ranging from paediatricians, geneticists, epileptologists, dieticians and physiotherapists. Provide a number of specialist Rett Clinics in partnership with the NHS. Website has free information leaflets and papers to download

Target group: Families, carers and professionals involved with people with Rett syndrome.

Area served: UK

How to contact: Phone (01582 798911), Email, Facebook and Website. Open Monday to Friday 9am-4.30pm


Monday: 9am - 4.30pm

Tuesday: 9am - 4.30pm

Wednesday: 9am - 4.30pm

Thursday: 9am - 4.30pm

Friday: 9am - 4.30pm

Weekends: Closed ( in case of an emergency please follow instructions on answerphone )

Office Hours:


Wheelchair access: Yes - full

Accessible toilets: Yes

Access notes: No on site parking, large car-park nearby, charges apply. Large disabled toilet, no Changing Places facilities

Other information

Languages other than English:

Charity number: 1137820

Year established: 34

Staffing: 8

Public transport:

Record last checked: 09 November 2021


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