Rett UK - Family Support Helpline
Victory House, Chobham Street
Luton
Bedfordshire
LU1 3BS
Public phone: 01582 798911
Email: support@rettuk.org
Website URL: http://www.rettuk.org
Service offered: Provide support to families, carers and professionals involved with people with Rett syndrome. The support team provides a valuable life-line for families across the UK from pre-diagnosis through to end of life support. Offer practical help, information and a listening ear to enable families to cope. If the team is unable to deal with a particular question then Rett UK has a network of professionals who will be able to help, ranging from paediatricians, geneticists, epileptologists, dieticians and physiotherapists. Provide a number of specialist Rett Clinics in partnership with the NHS. Website has free information leaflets and papers to download.
Target group: Families, carers and professionals involved with people with Rett syndrome.
Area served: UK
How to contact: Phone (01582 798911), Email, Facebook and Website
Monday: 9am - 4.30pm
Tuesday: 9am - 4.30pm
Wednesday: 9am - 4.30pm
Thursday: 9am - 4.30pm
Friday: 9am - 4.30pm
Weekends: Closed ( in case of an emergency please follow instructions on answerphone )
Office Hours:
Wheelchair access: Not applicable
Accessible toilets: Not applicable
Access notes:
Languages other than English:
Charity number: 1137820
Year established: 34
Staffing: 5
Public transport:
Record last checked: 16 August 2018