Retina UK

Contact details

Retina UK
Whiteleaf Business Centre, 11 Little Balmer
MK18 1TF

Public phone: 0300 111 4000 Helpline / 01280 821334


Website URL:

General information

Service offered: Retina UK is the only UK charity dedicated to supporting people living with inherited retinal dystrophies and their families. We provide information and support via a Helpline, telephone Talk and Support service, Local Groups, webinars and Information Days as well as an Annual Conference. We also aim to raise funds for scientific research to provide treatments for inherited retinal dystrophies including retinitis pigmentosa (RP), rod-cone dystrophy; cone-rod dystrophy; choroideremia; LCA; Stargardts and Ushers Syndrome amongst others. We are also able to support other health care professionals who are supporting our community and want to know more about these conditions.

Target group: People with inherited retinal dystrophies including retinitis pigmentosa (RP) and other syndromes and their families and friends.

Area served: UK and international enquiries

How to contact: Phone or email


Monday: 9.30am - 9.30pm helpline

Tuesday: 9.30am - 9.30pm helpline

Wednesday: 9.30am - 9.30pm helpline

Thursday: 9.30am - 9.30pm helpline

Friday: 9.30am - 9.30pm helpline


Office Hours: Monday - Friday 9am - 5pm


Wheelchair access: Not applicable

Accessible toilets: Not applicable

Access notes: 

Other information

Languages other than English: Language Line.

Charity number: 1153851

Year established: 1976

Staffing: 20 – 10 full time and 10 part time

Public transport:

Record last checked: 10 August 2023


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